Rare and Complex Urology combines information on clinical aspects, network developments and patient journeys in specific rare and complex urological diseases within the ERN (European Reference Network) template structure, allowing for better diagnosis, treatment and patient outcome. Each chapter contains an introduction on specific diseases with representative clinical images followed by a clinical view on treatment options (non-surgical and surgical) with clear schema and drawings; nurse specialist views on current care, patient views on the lifelong journey and expected development and research innovations for the future. Diseases covered include those of the bladder, stone and kidney diseases, malformations, pelvic floor disorders, the female urethra, reconstruction, surgery, cancers and rare tumors. This is a must have reference for basic scientists interested in engaging in translational urology and surgery and well as urologists seeking guidance on how to implement novel research.
1. Chapter 1. Introduction: Rare urology, ERN eUROGEN and knowledge exchange - p. xviii 2. Chapter 2. The European Association of Urology (EAU) and ERN eUROGEN - p. 5 3. Part II: Overview chapters - p. 6 4. Chapter 3. ERN eUROGEN: Impact and innovations for rare and complex urology - p. 13 5. Chapter 4. The patient view on the ERN programme: Share, care, cure, and pathways - p. 31 6. Chapter 5. Cross-ERN actions and collaborations by ERN eUROGEN - p. 39 7. Chapter 6. Development of the ERN eUROGEN registry - p. 49 8. Chapter 7. Development of ERN eUROGEN clinical practice guidelines (CPGs) and clinical decision support tools (CDSTs) - p. 59 9. Part III: Clinical chapters - p. 67 10. Section A: Workstream 1: Rare congenital uro-recto-genital anomalies - p. 67 11. Chapter 8. Expertise Area 1.1: Complex genital reconstructions in patients with differences of sex development - p. 73 12. Chapter 9. Expertise Area 1.2: Bladder exstrophy/epispadias - p. 83 13. Chapter 10. Expertise Area 1.3: Rare urological stones and kidney diseases - p. 97 14. Chapter 11. Expertise Area 1.4: Nonsyndromic urogenital tract malformation (neurogenic bladder and spina bifida) - p. 107 15. Chapter 12. Expertise Area 1.5: Posterior urethral valves - p. 129 16. Chapter 13. Expertise Area 1.6: Proximal hypospadias - p. 141 17. Chapter 14. Expertise Area 1.7: Ano-uro-rectal malformations - p. 154 18. Section B: Workstream 2: Functional urogenital conditions requiring highly specialised surgery - p. 166 19. Chapter 15. Expertise Area 2.1: Complicated and complex pelvic floor disorders - p. 169 20. Chapter 16. Expertise Area 2.2: Rare diseases and conditions affecting the female urethra - p. 183 21. Chapter 17. Expertise Area 2.3: Urethral reconstruction in rare diseases and complex conditions - p. 195 22. Chapter 18. Expertise Area 2.4: Rare retroperitoneal diseases and conditions - p. 205 23. Chapter 19. Expertise Area 2.5: Bladder pain syndrome/Interstitial cystitis (BPS/IC) - p. 229 24. Chapter 20. Expertise Area 2.6: Adult urogenital reconstructive surgery - p. 245 25. Chapter 21. Expertise Area 2.7: Surgery for transgender patients - p. 253 26. Section C: Workstream 3: Rare urogenital tumours - p. 257 27. Chapter 22. Expertise Area 3.1: Penile cancer - p. 261 28. Chapter 23. Expertise Area 3.2: Testicular cancer - p. 269 29. Chapter 24. Expertise Area 3.3: Adrenal cancer - p. 281 30. Chapter 25. Expertise Area 3.4: Abdominopelvic sarcoma - p. 295 31. Chapter 26. Expertise Area 3.5: Rare renal tumour surgery - p. 316 32. Index - p. 327
Rare and Complex Urology combines information on clinical aspects, network developments and patient journeys in specific rare and complex urological diseases within the ERN (European Reference Network) template structure, allowing for better diagnosis, treatment and patient outcome. Each chapter contains an introduction on specific diseases with representative clinical images followed by a clinical view on treatment options (non-surgical and surgical) with clear schema and drawings; nurse specialist views on current care, patient views on the lifelong journey and expected development and research innovations for the future. Diseases covered include those of the bladder, stone and kidney diseases, malformations, pelvic floor disorders, the female urethra, reconstruction, surgery, cancers and rare tumors. This is a must have reference for basic scientists interested in engaging in translational urology and surgery and well as urologists seeking guidance on how to implement novel research.
1. Chapter 1. Introduction: Rare urology, ERN eUROGEN and knowledge exchange - p. xviii 2. Chapter 2. The European Association of Urology (EAU) and ERN eUROGEN - p. 5 3. Part II: Overview chapters - p. 6 4. Chapter 3. ERN eUROGEN: Impact and innovations for rare and complex urology - p. 13 5. Chapter 4. The patient view on the ERN programme: Share, care, cure, and pathways - p. 31 6. Chapter 5. Cross-ERN actions and collaborations by ERN eUROGEN - p. 39 7. Chapter 6. Development of the ERN eUROGEN registry - p. 49 8. Chapter 7. Development of ERN eUROGEN clinical practice guidelines (CPGs) and clinical decision support tools (CDSTs) - p. 59 9. Part III: Clinical chapters - p. 67 10. Section A: Workstream 1: Rare congenital uro-recto-genital anomalies - p. 67 11. Chapter 8. Expertise Area 1.1: Complex genital reconstructions in patients with differences of sex development - p. 73 12. Chapter 9. Expertise Area 1.2: Bladder exstrophy/epispadias - p. 83 13. Chapter 10. Expertise Area 1.3: Rare urological stones and kidney diseases - p. 97 14. Chapter 11. Expertise Area 1.4: Nonsyndromic urogenital tract malformation (neurogenic bladder and spina bifida) - p. 107 15. Chapter 12. Expertise Area 1.5: Posterior urethral valves - p. 129 16. Chapter 13. Expertise Area 1.6: Proximal hypospadias - p. 141 17. Chapter 14. Expertise Area 1.7: Ano-uro-rectal malformations - p. 154 18. Section B: Workstream 2: Functional urogenital conditions requiring highly specialised surgery - p. 166 19. Chapter 15. Expertise Area 2.1: Complicated and complex pelvic floor disorders - p. 169 20. Chapter 16. Expertise Area 2.2: Rare diseases and conditions affecting the female urethra - p. 183 21. Chapter 17. Expertise Area 2.3: Urethral reconstruction in rare diseases and complex conditions - p. 195 22. Chapter 18. Expertise Area 2.4: Rare retroperitoneal diseases and conditions - p. 205 23. Chapter 19. Expertise Area 2.5: Bladder pain syndrome/Interstitial cystitis (BPS/IC) - p. 229 24. Chapter 20. Expertise Area 2.6: Adult urogenital reconstructive surgery - p. 245 25. Chapter 21. Expertise Area 2.7: Surgery for transgender patients - p. 253 26. Section C: Workstream 3: Rare urogenital tumours - p. 257 27. Chapter 22. Expertise Area 3.1: Penile cancer - p. 261 28. Chapter 23. Expertise Area 3.2: Testicular cancer - p. 269 29. Chapter 24. Expertise Area 3.3: Adrenal cancer - p. 281 30. Chapter 25. Expertise Area 3.4: Abdominopelvic sarcoma - p. 295 31. Chapter 26. Expertise Area 3.5: Rare renal tumour surgery - p. 316 32. Index - p. 327
