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Provide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their interprofessional colleagues, Primary Care of Children with Chronic Conditions offers expert guidance on the management of children with special needs and their families. Comprehensive coverage presents the most current knowledge and insights available on these specific conditions, including information on the COVID-19 pandemic. This valuable resource helps providers improve pediatric care for chronic conditions and addresses the need for transitional care to adulthood and the issues and gaps in healthcare that may hinder the quality of care for this unique population.

1. Primary Care of Children with Chronic Conditions - p. i 2. Cover - p. i 3. Half-title - p. ii 4. Title Page - p. iii 5. Copyright - p. iv 6. Dedication - p. v 7. Acknowledgments - p. vi 8. Reviewers - p. vii 9. Contributors - p. ix 10. Preface - p. xii 11. Contents - p. xii 12. 1 The Primary Care Provider and Systems of Care - p. xii 13. 2 Chronic Conditions and Child Development - p. 25 14. 3 School and the Child With a Chronic Condition - p. 49 15. 4 Transitions to Adulthood - p. 73 16. 5 Ethics and the Child With a Chronic Condition - p. 87 17. 6 Managing Chronic Conditions via Telehealth - p. 103 18. 7 Asthma and Allergies - p. 123 19. 8 Anxiety Disorders and Obsessive-Compulsive Disorder - p. 163 20. 9 Attention-Deficit/Hyperactivity Disorder - p. 179 21. 10 Autism Spectrum Disorder - p. 210 22. 11 Bleeding Disorders - p. 237 23. 12 Bone Marrow Transplantation - p. 268 24. 13 Cancer - p. 317 25. 14 Celiac Disease - p. 341 26. 15 Cerebral Palsy - p. 351 27. 16 Cleft Lip and Palate* - p. 372 28. 17 Congenital Adrenal Hyperplasia* - p. 395 29. 18 Congenital Heart Disease - p. 417 30. 19 Cystic Fibrosis - p. 463 31. 20 Diabetes Mellitus (Types 1 and 2) - p. 487 32. 21 Down Syndrome - p. 510 33. 22 Eating Disorders - p. 536 34. 23 Epilepsy - p. 560 35. 24 Fragile X Syndrome - p. 581 36. 25 Human Immunodeficiency Virus Infections and Acquired Immunodeficiency Syndrome - p. 596 37. 26 Hydrocephalus - p. 618 38. 27 Inflammatory Bowel Disease - p. 639 39. 28 Juvenile Idiopathic Arthritis - p. 668 40. 29 Kidney Disease, Chronic - p. 683 41. 30 Mood Disorders: Behavioral and Developmental Influences - p. 716 42. 31 Muscular Dystrophy, Duchenne - p. 735 43. 32 Obesity - p. 755 44. 33 Organ Transplantation - p. 787 45. 34 Phenylketonuria - p. 818 46. 35 Prematurity - p. 837 47. 36 Sickle Cell Disease - p. 855 48. 37 Spina Bifida - p. 885 49. 38 Tourette Syndrome - p. 899 50. 39 Traumatic Brain Injury - p. 913 51. Index - p. 941

Descripcion
Descripción

Provide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their interprofessional colleagues, Primary Care of Children with Chronic Conditions offers expert guidance on the management of children with special needs and their families. Comprehensive coverage presents the most current knowledge and insights available on these specific conditions, including information on the COVID-19 pandemic. This valuable resource helps providers improve pediatric care for chronic conditions and addresses the need for transitional care to adulthood and the issues and gaps in healthcare that may hinder the quality of care for this unique population.

1. Primary Care of Children with Chronic Conditions - p. i 2. Cover - p. i 3. Half-title - p. ii 4. Title Page - p. iii 5. Copyright - p. iv 6. Dedication - p. v 7. Acknowledgments - p. vi 8. Reviewers - p. vii 9. Contributors - p. ix 10. Preface - p. xii 11. Contents - p. xii 12. 1 The Primary Care Provider and Systems of Care - p. xii 13. 2 Chronic Conditions and Child Development - p. 25 14. 3 School and the Child With a Chronic Condition - p. 49 15. 4 Transitions to Adulthood - p. 73 16. 5 Ethics and the Child With a Chronic Condition - p. 87 17. 6 Managing Chronic Conditions via Telehealth - p. 103 18. 7 Asthma and Allergies - p. 123 19. 8 Anxiety Disorders and Obsessive-Compulsive Disorder - p. 163 20. 9 Attention-Deficit/Hyperactivity Disorder - p. 179 21. 10 Autism Spectrum Disorder - p. 210 22. 11 Bleeding Disorders - p. 237 23. 12 Bone Marrow Transplantation - p. 268 24. 13 Cancer - p. 317 25. 14 Celiac Disease - p. 341 26. 15 Cerebral Palsy - p. 351 27. 16 Cleft Lip and Palate* - p. 372 28. 17 Congenital Adrenal Hyperplasia* - p. 395 29. 18 Congenital Heart Disease - p. 417 30. 19 Cystic Fibrosis - p. 463 31. 20 Diabetes Mellitus (Types 1 and 2) - p. 487 32. 21 Down Syndrome - p. 510 33. 22 Eating Disorders - p. 536 34. 23 Epilepsy - p. 560 35. 24 Fragile X Syndrome - p. 581 36. 25 Human Immunodeficiency Virus Infections and Acquired Immunodeficiency Syndrome - p. 596 37. 26 Hydrocephalus - p. 618 38. 27 Inflammatory Bowel Disease - p. 639 39. 28 Juvenile Idiopathic Arthritis - p. 668 40. 29 Kidney Disease, Chronic - p. 683 41. 30 Mood Disorders: Behavioral and Developmental Influences - p. 716 42. 31 Muscular Dystrophy, Duchenne - p. 735 43. 32 Obesity - p. 755 44. 33 Organ Transplantation - p. 787 45. 34 Phenylketonuria - p. 818 46. 35 Prematurity - p. 837 47. 36 Sickle Cell Disease - p. 855 48. 37 Spina Bifida - p. 885 49. 38 Tourette Syndrome - p. 899 50. 39 Traumatic Brain Injury - p. 913 51. Index - p. 941

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