The Textbook of Interdisciplinary Pediatric Palliative Care, presents interdisciplinary coverage of palliative care for children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth.
1. Chapter 1: Introduction - p. iii 2. Chapter 2: The Language of Pediatric Palliative Care - p. iii 3. Chapter 3: Epidemiology and the Care of Children with Complex Conditions - p. iii 4. Chapter 4: Children's Voices: The Experience of Patients and Their Siblings - p. iii 5. Chapter 5: Understanding the Illness Experience and Providing Anticipatory Guidance - p. iii 6. Chapter 6: Anticipatory Grief and Bereavement - p. iii 7. Chapter 7: The Team - p. iii 8. Chapter 8: Settings of Care - p. iii 9. Chapter 9: Program Development and Implementation - p. iii 10. Chapter 10: The Evidence Base - p. iii 11. Chapter 11: Research Considerations in Pediatric Palliative Care - p. iii 12. Chapter 12: Interdisciplinary Education and Training - p. iii 13. Chapter 13: Faith, Hope, and Love: An Interdisciplinary Approach to Providing Spiritual Care - p. iii 14. Chapter 14: The Interface of Ethics and Palliative Care - p. iii 15. SECTION 2: Relationships: Structure and Communication - p. iii 16. Chapter 15: Introduction - p. iii 17. Chapter 16: Child Relationships - p. iii 18. Chapter 17: Parent and Sibling Relationships and the Family Experience - p. iii 19. Chapter 18: Team Relationships - p. iii 20. Chapter 19: Relationships with the Community: Palliative Care and Beyond - p. iii 21. Chapter 20: Self-Care: The Foundation of Care Giving - p. iii 22. Chapter 21: Practical Aspects of Communication - p. iii 23. Chapter 22: Introducing Palliative Care - p. iii 24. Chapter 23: Introducing Home-Based Palliative Care and Hospice - p. iii 25. Chapter 24: Resuscitation - p. iii 26. Chapter 25: Palliative Sedation - p. iii 27. Chapter 26: Organ Donation - p. iii 28. Chapter 27: Autopsy - p. iii 29. SECTION 3: Easing Suffering - p. iii 30. Chapter 28: Introduction - p. iii 31. Chapter 29: Psychological Symptoms - p. iii 32. Chapter 30: Neurological Symptoms - p. iii 33. Chapter 31: Delirium - p. iii 34. Chapter 32: Fatigue - p. iii 35. Chapter 33: Sleep and Insomnia - p. iii 36. Chapter 34: Pain Assessment and Management - p. iii 37. Chapter 35: Respiratory Symptoms - p. iii 38. Chapter 36: Gastrointestinal Symptoms - p. iii 39. Chapter 37: Hematologic Symptoms - p. iii 40. Chapter 38: Dermatologic Conditions and Symptom Control - p. iii 41. Chapter 39: Easing Distress When Death is Near - p. iii 42. SECTION 4: Illness and Treatment Experience - p. iii 43. Chapter 40: Introduction - p. iii 44. Chapter 41: Prenatal and Neonatal Palliative Care - p. iii 45. Chapter 42: Inherited Life-Threatening Illnesses - p. iii 46. Chapter 43: Neurologic Diseases - p. iii 47. Chapter 44: Advanced Heart Disease - p. iii 48. Chapter 45: Cystic Fibrosis - p. iii 49. Chapter 46: Solid Organ Transplant - p. iii 50. Chapter 47: Integration of Therapeutic and Palliative Care in Pediatric Oncology - p. iii 51. Chapter 48: Primary and Acquired Immunodeficiency Disorders - p. iii 52. Index - p. iii
The Textbook of Interdisciplinary Pediatric Palliative Care, presents interdisciplinary coverage of palliative care for children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth.
1. Chapter 1: Introduction - p. iii 2. Chapter 2: The Language of Pediatric Palliative Care - p. iii 3. Chapter 3: Epidemiology and the Care of Children with Complex Conditions - p. iii 4. Chapter 4: Children's Voices: The Experience of Patients and Their Siblings - p. iii 5. Chapter 5: Understanding the Illness Experience and Providing Anticipatory Guidance - p. iii 6. Chapter 6: Anticipatory Grief and Bereavement - p. iii 7. Chapter 7: The Team - p. iii 8. Chapter 8: Settings of Care - p. iii 9. Chapter 9: Program Development and Implementation - p. iii 10. Chapter 10: The Evidence Base - p. iii 11. Chapter 11: Research Considerations in Pediatric Palliative Care - p. iii 12. Chapter 12: Interdisciplinary Education and Training - p. iii 13. Chapter 13: Faith, Hope, and Love: An Interdisciplinary Approach to Providing Spiritual Care - p. iii 14. Chapter 14: The Interface of Ethics and Palliative Care - p. iii 15. SECTION 2: Relationships: Structure and Communication - p. iii 16. Chapter 15: Introduction - p. iii 17. Chapter 16: Child Relationships - p. iii 18. Chapter 17: Parent and Sibling Relationships and the Family Experience - p. iii 19. Chapter 18: Team Relationships - p. iii 20. Chapter 19: Relationships with the Community: Palliative Care and Beyond - p. iii 21. Chapter 20: Self-Care: The Foundation of Care Giving - p. iii 22. Chapter 21: Practical Aspects of Communication - p. iii 23. Chapter 22: Introducing Palliative Care - p. iii 24. Chapter 23: Introducing Home-Based Palliative Care and Hospice - p. iii 25. Chapter 24: Resuscitation - p. iii 26. Chapter 25: Palliative Sedation - p. iii 27. Chapter 26: Organ Donation - p. iii 28. Chapter 27: Autopsy - p. iii 29. SECTION 3: Easing Suffering - p. iii 30. Chapter 28: Introduction - p. iii 31. Chapter 29: Psychological Symptoms - p. iii 32. Chapter 30: Neurological Symptoms - p. iii 33. Chapter 31: Delirium - p. iii 34. Chapter 32: Fatigue - p. iii 35. Chapter 33: Sleep and Insomnia - p. iii 36. Chapter 34: Pain Assessment and Management - p. iii 37. Chapter 35: Respiratory Symptoms - p. iii 38. Chapter 36: Gastrointestinal Symptoms - p. iii 39. Chapter 37: Hematologic Symptoms - p. iii 40. Chapter 38: Dermatologic Conditions and Symptom Control - p. iii 41. Chapter 39: Easing Distress When Death is Near - p. iii 42. SECTION 4: Illness and Treatment Experience - p. iii 43. Chapter 40: Introduction - p. iii 44. Chapter 41: Prenatal and Neonatal Palliative Care - p. iii 45. Chapter 42: Inherited Life-Threatening Illnesses - p. iii 46. Chapter 43: Neurologic Diseases - p. iii 47. Chapter 44: Advanced Heart Disease - p. iii 48. Chapter 45: Cystic Fibrosis - p. iii 49. Chapter 46: Solid Organ Transplant - p. iii 50. Chapter 47: Integration of Therapeutic and Palliative Care in Pediatric Oncology - p. iii 51. Chapter 48: Primary and Acquired Immunodeficiency Disorders - p. iii 52. Index - p. iii